The family and friends of Molly Wood are uniting to raise money to help in her battle against Hodgkin's Lymphoma. Please read on for an update on Molly’s health. Molly was diagnosed with Stage IV Hodgkin’s Lymphoma in late 2010. After completing chemotherapy in the fall of 2011, Molly was cancer-free. Of course, her doctors continued to monitor Molly and last July they detected a new mass in her chest that appeared near her windpipe. Initially, they were not too concerned as the mass appeared to be exceptionally slow-growing. Following her most recent PET scan and a successful tissue biopsy, they have determined that the mass is cancerous and she has been diagnosed with Stage II Hodgkin’s Lymphoma - there appears to be no cancerous growth in her bone marrow this time.
Molly has met with her oncologist who has proposed a treatment plan that, while extremely rigorous, is also highly successful in treating recurrent Hodgkin’s. In addition to chemotherapy, Molly would also undergo a bone marrow transplant. The biggest drawback to this is that following the bone marrow transplant, Molly will not be able to receive chemotherapy treatment in the future should she ever need to. Due to this new development, she will be going to the Mayo clinic in Rochester, MN to get a second opinion. She may also seek a third opinion from the University of Nebraska at Omaha.
Molly will be unable to work during this time as she is traveling to get additional opinions from other doctors as well as once she begins the chosen course of treatment. As before, we are hoping to alleviate some of the burdens and stresses of her medical expenses. With your help, we can alleviate the financial responsibilities so that Molly can focus on once again being cancer-free!
Want to learn more?
The following are resources to help you learn more about Hodgkin's Lymphoma and the fight to find a cure
May.18.2016 at 10:40 AMTHE BEGINNING OF THE END
I have received the dreaded phone call – my freedom has been stripped from me & I have to turn myself in. In just a few short hours, I will be walking into the University Hospital where I’ll remain captive for about 30 days. I’ll be at the mercy of doctors, nurses, blood pressure monitors, constant beeping & a chemo pole – not to mention a smell that turns my stomach & makes me want to run for the hills. This is the day I’ve literally been trying to avoid for the past 2.5 years. However, I’ve been in denial & I’ve been stubborn for too long & I know those characteristics have been detrimental to my health. It’s time to bite the bullet & face this head-on…run into the fire guns blazing. All the cliche terms you can think of apply to this moment in time…and I am beyond scared, beyond nervous, beyond anxious. I am absolutely dreading it. I never want to feel the way I’m feeling right now ever again in my life. While I’ve had time to process this & have known this day has been coming, the actual phone call was a harsh reality check.
Despite all the negative feelings I have, I do have to count my blessings & focus on the positives. I am a mere 30 days from beating this & hopefully will rid myself of this black cloud that’s been hovering over me for far too long. 30 days is nothing compared to the 5.5 years I’ve been dealing with this. The 1st week in the hospital will, hands down, be the worst week of my life – I’ll be inundated with 4 different chemo drugs until my immune system is completely wiped out. I’ll feel sick, nauseous, weak, close to death. The bacteria in my gut will be my worst enemy. But then I’ll get my stem cells back & those suckers will go to town to rebuild me from the ground up. They’ll give me a fresh, new, (hopefully) cancer-free immune system & after a few months, I’ll be Molly 2.0…stronger, healthier, sexier. I’ll have a new lease on life & an excuse to celebrate 2 birthdays every year – in my opinion, the more reasons to celebrate (i.e. receive gifts), the better. It has been a long road full of obstacles & potholes, but it’s a very exciting feeling knowing this could all be coming to an end very soon.
During my hospital stay, I will be allowed to have visitors, but I think they only permit 3 at a time. So if you’re interested in gracing me with your presence, call, text or message me & we will definitely figure out the best time & day for that to happen. I would love to hear from all of you regardless, so please message me if you have the chance…it’ll help the time go much more smoothly & quickly…& it’ll do wonders for my mood. Don’t think that you’ll be bugging me or interrupting anything because that will be the furthest thing from the truth.
I’ll do my best to keep you updated during this 30-day roller coaster ride. Thank you all so much for helping me along this journey & for never letting me feel like I’m in this alone. Words truly cannot express my extreme gratitude.
Much Love, MollyMay.13.2016 at 10:38 AMCOLLECTION COMPLETE
Last week I went to Iowa City to start the stem cell transplant process. On Tuesday morning, I had a central line put into my left jugular vein. I was a little worried about this procedure, but it went very smoothly and quickly. It was a bit sore the whole time it was in & my range of motion was slightly limited, but all-in-all, not a big deal. After I was finished in the OR, I reported to the donor center where they took a vial of blood to determine if my white count was high enough to bypass the booster shot scheduled for later that night. Of course, my counts were low so I had to report back to the hospital at 8 PM to get yet another shot in my arm. This drug was called Mozobil & it’s job was to help my bone marrow release stem cells into my bloodstream so that they could be more easily collected the following day.
On Wednesday at 8 AM, I reported back to the blood donation center, where they hooked up my central line to the pheresis machine & began collecting my blood. The machine separated & collected my stem cells over the course of 5 hours. The goal was to collect at least 5 million stem cells on this day. If not, I would have to come back the next day to collect more until the goal had been achieved. A few hours after I left the hospital, the transplant nurse called to tell me that I had collected 17 million stem cells! I thought for sure I would be collecting over a course of 2-3 days, because that’s just my luck, so I was elated to hear this news. For me, the less time in the hospital, the better. The Mozobil shot proved to be highly successful & worth every uncomfortable side effect.
After the central line was pulled (13 cm in length, yikes!), I was free to go home. So for the past week, I have just been working & awaiting a phone call informing me when a bed will be available on the transplant floor. As of this moment in time, I still have not received that call. I am OK with having a week or 2 to work & get my affairs in order before spending 4 consecutive weeks in the hospital. I’ve spent my evenings after work pampering myself in the form of massages & facials & tanning. I’m trying to be outside as much as possible because I won’t be able to set foot outdoors for 30 days. That will probably be the hardest part of this whole ordeal, especially because summer is approaching. However, I realize that in the grand scheme of things, this is only a small fraction of time & the end is in sight.
Keep those uplifting messages & prayers coming my way! They do wonders for my mood & attitude! I’ll let you know when I get the impending, inevitable phone call.
Love, MollyMay.01.2016 at 1:44 PMPRAYERS ANSWERED, CRISIS AVERTED
I found out some really great news on Tuesday afternoon….my insurance was reinstated! This came as such a relief & I didn’t know whether to break down & cry or jump up & down in happiness. It had been such a stressful situation but the outcome couldn’t have been better & I owe many people a big ‘thank you’ for helping me through this ordeal. Luckily, this mishap did not cause a delay in my treatment plans & the schedule remains on track.
I went to Iowa City on Thursday (April 28th) to meet with the transplant nurse & the transplant physician assistant to sign paperwork & to discuss the upcoming schedule. I also went to the blood donation center to have them look at my veins to determine if they are adequate to use for stem cell collection…sigh, they are not. Yesterday, today & tomorrow I receive 2 shots each day of a white blood cell-boosting drug called Neupogen. Fortunately, I am able to have these shots in Des Moines. Since the drug stimulates the bone marrow to rapidly produce white blood cells, a side effect is bone pain, which I have thus far been able to keep at bay with Advil. Monday morning before work I will go in for the final 2 shots. Tuesday morning I go back to Iowa City so that we can start the stem cell collection process. At 9AM, I will have a central line inserted into my jugular vein (yikes!) because my arm veins are small & not suitable to use for this high-rate collection process. Afterwards, I will report to the blood center, where I will give up all my freshly-made stem cells. This process will take about 5 hours & the goal is to donate 5 million stem cells. If this goal is not achieved, I’ll repeat it the following day. 2 million stem cells is the bare minimum amount in order to proceed with the transplant.
Once the adequate number of cells have been harvested, which can take 2-4 days, the line will be taken out of my jugular & I will be free to go home until a bed on the transplant unit becomes available. There are only 15 beds in this unit, so I was told availability may take 1-2 weeks. Once I get the phone call, I’ll be admitted & the 4-week-long hospital stay will begin.
Thank you for all of your supportive, uplifting messages during this stressful time. The chaos about my insurance really upset me & put me in a bit of a panic, but thankfully, it all worked out. I appreciate all the prayers & well-wishes more than you’ll ever know.
I’ll post again after the collection phase is complete & let you know how that goes. I’ll be one step closer to having this whole ordeal behind me.
Much love, MollyApr.24.2016 at 9:18 PMA DELAY OF PLANS
I know it’s been over a month since I last posted & I apologize for that. I had cycle 3 of ICE on March 30th – April 1st. During that stay, I also had a lung function test & an echocardiogram to ensure that my heart & lungs are healthy enough to undergo a stem cell transplant. For the most part, Cycle 3 was uneventful & the side effects didn’t seem as lengthy or as miserable as they did following Cycles 1 & 2. I bounced back pretty quickly & was able to enjoy my birthday on April 7th with family members that had come to visit for a few days.
On April 20th, I went back to Iowa City to discuss with my oncologist & the transplant team the ins & outs of what a stem cell transplant will entail….shocking news: it does NOT sound fun. In order to collect cells for the transplant, I will need a series of 4 shots over a course of 4 days. The purpose of these shots is to signal the bone marrow to produce more stem cells & to push the cells out into my bloodstream. I will then go to the hospital where they will put an IV into each arm. From one IV they will collect my blood, which will be rich in stem cells. The blood will go through a process called apheresis, in which a machine will separate & collect the stem cells. The remaining blood will be returned through the IV in my other arm. The stem cells will be stored & frozen until I’m ready to get them back. This whole process will take about 5 hours & the goal is to collect about 5 million stem cells. If I don’t reach that goal, I’ll have to go back the following day so they can collect more. I have to give up no less than 2 million stem cells in order to have a transplant.
Once stem cell collection is complete, it will probably be another 1-2 weeks before they have a bed ready for me in the transplant unit. Once a bed is available, I will be in the hospital for 4 consecutive weeks. During the 1st week I will be getting a chemo cocktail called BEAM. From what the nurse said, BEAM is much, much more intense than ICE & it is not well tolerated – people become very nauseous & sick while receiving BEAM. The purpose of BEAM is to obliterate the immune system & bring it down to baseline. It essentially serves to reboot the immune system so that it can start fresh. During this time, I will be very prone to infections so will be given IV antibiotics as well as anti-nausea meds. Once BEAM is completed, they’ll reheat my stem cells & give them back to me via my port. The stem cells will do their job to rebuild my immune system & I will stay in the hospital until my blood counts rebound & they feel I have enough energy to care for myself. I will have weekly check-ups for the 1st month or so but complete recovery of immune function will take much longer – I was told to prepare to take off work for 3-6 months. UGH. During recovery, they told me to expect to feel very weak & fatigued; I will be able to care for myself, but not much else, so I will need a caregiver around me during this time. With that being said, I plan on living back at home with my parents for a few months until I regain my energy.
I will be able to have visitors while I’m in the hospital as long as they are healthy & not showing symptoms of a cold or flu (young children won’t be allowed, though…sorry). So PLEASE come visit me if you’re so inclined because I know I’ll be going out of my damn mind. I can barely handle 3 days in the hospital…4 weeks is going to be absolute torture. I am going to feel like a caged animal because I won’t even be allowed to leave the transplant unit, let alone go outside, for 4 weeks.
The transplant was scheduled to start on May 2nd, but last week I had some very crushing news – hence the title of this post. I received notification that my insurance has been denied & my coverage ends on the last day of April. I was absolutely devastated after learning this & have been in a panic ever since trying to figure out what to do next. Luckily, my employer has been super supportive & a social worker at Medicaid has been a God-send in helping me figure this all out. I should know more by the end of this week, but am hoping this was an error & that I’ll be insured again soon. Depending upon what I learn, I may have another round of ICE this Wednesday. For the transplant, I have to wait at least 1 month after my last chemo, but no longer than 3 months. I am really hoping I won’t need a 4th round of ICE, but at this point, I don’t know for certain. This whole insurance debacle has been infinitely stressful & frustrating & has thrown a wrench in my treatment schedule. I hope to have good news to share later on this week but in the meantime, keep me in your prayers because I sure could use a small miracle right about now!
MollyMar.19.2016 at 5:37 PMICE CYCLE 2
Hi there –
Wednesday, March 9th marked the start of Cycle 2 of ICE chemotherapy. After several hours of waiting around for a bed, I was finally admitted into the hospital around 7PM. They started my 1st drug right away but because of the late admission, I wasn’t discharged until around 4:30 on Friday afternoon. I received the same regimen as the 1st time with the exception of a blood transfusion – my hemoglobin level remained high enough that one was not required, thank goodness. Overall, my hospital stay was pretty uneventful. I spent the hours watching TV, reading, Snapchatting & taking frequent walks around the building. Because of these walks, I only gained about 9 pounds in bloat this time around! Maybe next cycle I will speed-walk laps around the hospital to prevent it all together…kidding. After a quite lengthy list of discharge instructions (no flossing??!!…psst, who do they think they’re talking to? that’s not gonna happen), I was free to waddle out of there – at least for another 3 weeks anyway.
Although happy to be out of the hospital setting, the 1st several days of recovery were definitely the most difficult because the chemo was still coursing through my body. I was literally surrounded and encompassed by it. The taste sat on my tongue, the smell remained stagnant in my nose, the scent lingered on my skin. I could seek no reprieve from it and therefore maintained this moderate level of nausea for many continuous days. I did all I could think of to flush it out faster – drank lots of water, took hot showers, soaked in a detox bath, used peppermint oil on my tongue and under my nose to mask the smell and taste – but nothing really seemed to work. Those days made me question whether all of this is really worth it, whether I truly am doing the right thing; however, by Wednesday I was feeling noticeably better and could no longer smell it in the air around me. My tongue and taste buds remain affected by the drugs, but I use this as an excuse to eat a lot of spicy Mexican take-out. Today I feel nearly 100% and will return to work on Monday morning. This will be difficult only in the fact that I’ve become accustomed to waking around 10 o’clock or later this past week.
In the last post, I deliberated with either shaving my head or cutting it short for a while. That decision was essentially made for me and I was forced into shaving my head a little sooner than I had initially anticipated. After work on March 7th, I went to my hair stylist to have my head shaved for the 2nd time in my life. The 1st time, in 2011, it was an all-out event…lots of friends and family there to support me, enough tears to bring the Mississippi to flood stage, etc. This time around was much different – in fact, I was quite surprised by how calm and unemotional I remained during the process. I guess I had achieved a certain level of acceptance. Plus, my bald head wasn’t a foreign concept to me as it had been 5 years ago. Honestly, I think it was more difficult for my stylist than it was for me, which made it quite humorous. And, I know I’ve been blessed with a relatively lump-free head, which of course makes this all much more manageable. Thank you to my friends and family who have jumped on board Operation: Head-Shaving and have done this themselves as a sign of support…I am very grateful and feel the love!
I return to the hospital bright and early on March 30th for a PET scan to determine if and how well this treatment has been working for me. Those results will determine if I require 1 or 2 more cycles of ICE. After I see my oncologist that day, I’ll be admitted into the hospital for what I hope to be my 3rd and final cycle….cross your fingers and say your prayers that this will be the case. You have all been truly amazing with your messages and outpouring of love. These gestures honestly mean the world to me and fill me with such appreciation and feelings of empowerment. I love that you’re all fighting with me and for me.
xoxo…MollyMar.06.2016 at 5:50 PMHERE WE GO AGAIN…
I know this update has been long overdue and I apologize for that – especially because I’m not on Facebook so it’s difficult to know exactly what has been going on with me. I went to Tijuana, Mexico in early 2014 to undergo alternative treatment to fight my recurrent lymphoma. I obeyed a very strict diet/supplement/juicing plan that the doctors in Mexico had laid out for me while I was there and that I continued to maintain once I returned home. In October 2014, a CT at the University of IA showed that the tumors were not shrinking; in fact, they had increased in size slightly. After hearing this news, I got very frustrated and quit the alternative treatment altogether. My oncologist at the University continued to press the issue of the bone marrow transplant. He told me that it was my greatest chance to live to see my 40th birthday. At a 50% success rate, though, I was very hesitant and defiant about pursuing this treatment – after all, I felt really good, had minimal symptoms and chemo treatments had failed me in the past. It was hard for me to start yet more chemotherapy when I wasn’t feeling bad. I really struggled with this decision for quite some time. In late 2015, I started to become very short of breath and my cough worsened. After hearing from my family doctor that I had developed pneumonia because the lymphoma had infiltrated my right lung, thereby obstructing my airway and affecting my breathing, I knew that the situation was becoming too dire to ignore. My stubbornness and feelings of denial were becoming detrimental to my health.
In early February 2016, I had a port put in because my veins can’t handle the high-dose chemotherapy. I also had a PET scan and a bone marrow biopsy so that they could once again stage my disease. The bone marrow biopsy came back negative, thank goodness, but the PET scan showed new and increasing tumor growth in my neck, chest, underarms, and abdomen and metastasis into my lung, thereby giving me the diagnosis of Stage 4 recurrent Hodgkin’s Lymphoma.
On Wednesday, February 17th, I began my 1st cycle of ICE chemotherapy. I was admitted into the hospital that afternoon and was given 3 different chemo drugs until I was discharged on Friday afternoon. One of the drugs, the “I” in ICE, is given continuously over a 24-hr period. The other 2 drugs run only a few hours each. Because my hemoglobin was low, I also had a blood transfusion, which took about another 3 hours. Needless to say, I was anxious to be discharged and literally ran out of the hospital once they told me I was free to go. Anyone who has ever stayed any duration of time in the hospital knows that rest is pretty much out of the question. My roommate was on a ventilator and hooked up to the suction machine on the wall, so I requested earplugs in order to get any sleep whatsoever.
The 1st few days after leaving the hospital were the worst. I experienced severe fatigue and weakness. I had gained 14 lbs of bloat due to all the fluids so I didn’t get the most restful sleep for a few nights as I was up every 2 hours to use the bathroom. I wasn’t able to eat all that much because the thought of food repulsed me – my appetite was nonexistent. On Monday, I had a Neulasta shot, which is a drug that helps stimulate the bone marrow to make white blood cells. On Tuesday, I was feeling a bit better and by Wednesday I was pretty much back to normal and my appetite had slowly come back. The rest of the week went by smoothly and I was back to work on the following Monday. I have started to notice a significant amount of hair loss, so I’ll soon be making the decision to either rock a short style for a bit or to just bite the bullet and shave it all off. I recently purchased a new wig, which I must admit, looks pretty legit.
The ICE chemo regimen is every 3 weeks, so I return to the hospital this Wednesday, March 9th to see my oncologist before starting Cycle 2. After this cycle, I’ll have a PET scan to determine how well the treatment is working and from there it will be determined if I’ll require 1 or 2 more cycles of ICE before starting the process of the bone marrow transplant.
Again, I am sorry the notifications have been so few and far between. I know I have such immense support and so many loving friends and family members who want to know and who deserve to know what is happening on my end. I’ll post updates every cycle to keep you informed of my progress.
Thank you for your continued messages and countless prayers. I love hearing from you – it boosts my spirits beyond belief. I know I’m not fighting this battle alone.
Much love….MollyJan.27.2014 at 11:01 AMPLAN OF ATTACK
After months of deliberation and numerous opinions from various doctors, I have decided upon a treatment method. I will be going to a clinic in Tijuana, MX to see Dr. Castillo, a well-known alternative/conventional oncologist, who treats cancer patients from all over the world. I am leaving Sunday, February 16th and returning on Wednesday, March 19th. I will be receiving treatments in the form of low-dose chemo, vitamin C infusions, detoxes (many methods), supplements, diet changes, oxygen therapy, and hyperbaric chamber therapy. I will be at the clinic every day (except Sundays) for several hours each day. He will be monitoring my progress with CT scans and bloodwork. My mother will be traveling with me and will stay for the duration of my treatment so that I don’t have to go alone. I haven’t yet decided if I will be staying at a hotel in Tijuana or with my brothers who live in San Diego. I guess it may depend upon how difficult it is to cross the border twice a day.
When treatment is over, I will come back home for 3 months and follow the diet and supplement plan that he administers. I will then go back to see him for 10 more days of treatment. During this time, he will reassess my condition and give me his opinion on how I should proceed from there.
I am excited to start treatment and also to get away from this polar vortex for a month. I am very hopeful that this will be the cure that I am looking for. It may require a major lifestyle change, but I am willing to do whatever it takes to be cancer-free once and for all…and do what is needed to avoid a bone marrow transplant.
Thank you for all your prayers, messages, donations and words of encouragement. I cannot stress enough how much your support means to me – it truly gives me strength. Wish me luck in Mexico & to coming home cancer-free!
I will be in touch as much as possible. Love you all.Jan.06.2014 at 12:26 PMRECENT CT
I hope you all had a very Merry Christmas and a happy New Year! Both holidays were good for me as I was able to spend time with family and friends.
Last Thursday I went back to Iowa City for a CT scan and an appointment with my oncologist. It had been about 5 months since my previous CT. The scan last week showed no growth in the sizes of the masses since August. They have been stable for the past several months, which is good news. My cough has seemed to become less frequent, too. After reviewing my CT, my doctor told me she felt comfortable allowing me a few months to try other (and alternative) methods. She still feels a bone marrow transplant should be my course of treatment, but I told her that option was my Plan B. I want to have complete peace of mind before undergoing something so drastic and radical.
I have been in touch with a doctor from Tijuana, Mexico who treats cancer patients with both chemo (low doses) and alternative methods. I am strongly considering this as an option. I have always felt that a combination therapy is something in which I would be interested. There is also a clinic in Mesa, AZ that performs similar treatments as Mexico. These programs would be all out-of-pocket as insurance would not cover much, if any, of the associated costs. I am still deliberating on which route to take, but will be making a decision sooner than later.
Thanks for keeping in touch and for checking in on me. As always, it’s your support that keeps me fighting and in good spirits. I will let you all know my final decision soon.
Love you.Dec.04.2013 at 10:48 AMBIOPSY CONCLUSIVE
I hope you all had a very happy Thanksgiving and were able to spend quality time with family and friends. I have finally received the results of my latest biopsy. Omaha confirmed that I do indeed have recurrent Hodgkin’s. They were able to get enough tissue via video mediastinoscopy to conclude this with 100% certainty. There was scar tissue in the area, but my surgeon was able to go very slowly and deliberately to get the sample we needed. I was in recovery for a little longer than expected because I kept getting sick from the anesthesia medicines. My neck was sore for a few days afterward, but the swelling has gone down and I am not in any pain now.
I am still in deliberation on how I would like to proceed with treatment from here. The next step with conventional medicine would be the stem cell/bone marrow transplant. However, I have been exploring alternative methods and may choose to go down this path for a few months. I am essentially asymptomatic (with the exception of a slight, nagging cough) and feel very good. My thought is to pursue the alternative option for a limited amount of time and request another CT to determine it’s effectiveness. I would like to avoid a transplant if at all possible, especially knowing that conventional medicine didn’t really work for me in the past. I was treated but I was not cured.
I feel like there are so many opinions, views, methods, etc and there is no clear-cut answer for me. I know that I cannot wait too long to make a decision or to proceed with treatment, but there is still so much I need to sort out. I will definitely keep you all updated with my decisions. Please continue to keep me in your thoughts and prayers; I truly appreciate all the messages and support I get from each of you.
MollyNov.20.2013 at 10:39 AMBIOPSY SCHEDULED
After many weeks of waiting on slides to be sent from the U of IA and to be stained by Omaha, the pathologists at the U of NE have concluded that while my most recent biopsy is suspicious for Hodgkin’s, they cannot determine it with 100% certainty. Therefore, I will need yet another biopsy to figure out once and for all (hopefully) what is growing inside my chest.
Yesterday I spoke with the thoracic surgeon at Omaha who would be performing my biopsy, which is called a ‘video mediastinoscopy.’ She would make a 1-2 inch incision at the base of my neck and maneuver a scope and camera to the enlarged mass. Then she would remove a large sample (or many large samples) with forceps instead of a needle. This biopsy technique seems much more promising than the fine-needle aspirations I have had in the past because it will allow us to get a much larger tissue sample. The previously inconclusive results are due to the surgeons not being able to remove enough tissue.
This biopsy is scheduled for this Friday. I will be in surgery for about an hour and then be in recovery for about 2 hours and then be allowed to go home once I feel OK.
This entire biopsy is based on the premise that there is no scar tissue from my previous surgery that would be in her way. If there is scar tissue in the area that she needs to be, then she would not be able to perform this surgery. She did mention another approach that would involve a very long needle going through my right side. In order to do this, they would have to deflate my right lung and I would be in the hospital for 3 days with a chest tube and I would need a full 2 weeks to recover. I am not on-board with this method, so let’s all hope and pray that the video mediastinoscopy is successful!
Thanks again for checking in and I will let you all know how surgery goes this Friday! Love you all.
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